Shane and his family first came to W.A.G.S. in 2013 as an amazing little six-year-old born with CHARGE Syndrome, a genetic anomaly affecting approximately one in 12,000 births. In Shane’s case, he was born with a major heart defect requiring multiple medical procedures including two open-heart operations and the installation of a pacemaker. Shane is extremely nearsighted and has colobama which greatly limits his field of vision. He is also profoundly deaf in one ear and moderately deaf in the other. Shane was born with only one functioning kidney. He also has very low muscle tone, which contributes to mobility challenges.